In the Houston area a video showing a caregiver abusing her
elderly charge recently went viral. The woman in the video was arrested and
charged with elder abuse, a felony in Texas. One good thing to come out of
watching that video is that I realized I never actually spoke about the best
ways to survive caring for your loved one. I hope that the stories I tell you are read
in the way in which I intend them - with a sense of humor. I love my
mother-in-law and with all close members of your family, sometimes they do
things that just drive you nuts! This particular blog is full of funny stories
and encounters that I know other caregivers/sitters/sons and daughters-in-law
can relate to. That's all.
That being said...
The decision to
care for a parent is never taken lightly. We tried to pawn ours off on other
family members first but there were no takers. So she's ours! (See, a joke!)
But seriously, both partners/all family members need to be onboard because it
can be very stressful at times. You're talking about combining households and
bridging generational gaps; not an easy feat. So it's important to always keep
your sense of humor. Let's make that rule #1.
1. Keep your sense
of humor. And if you don't have one, find one. Pronto.
2. Make time for
yourself. It's impossible to be at your best all the time. Take time to
recharge, either by yourself if you're going at this alone or as a
couple/family unit. You need to remember why you decided to take on this responsibility
and that can be difficult when you're in the thick of it. Dinner? Movie?
Concert? Play date? Nap? Long bath? Can a neighbor or family member check in on
your elderly parent? Or take them out for an afternoon? Whatever arrangements
you can make, make them and take some time to get your head straight.
3. It is ok to be
emotional. Be mad, sad, upset, happy, closer together, further apart, or even
feel grief. Your relationship is not the same as it was when you were younger,
especially if you have a parent suffering from dementia, Alzheimer's disease,
or physical impairments. Find someone to talk to, write it out (hello!), sing
it out, and cry it out.
4. Know your
limits. You cannot do everything yourself. There may (and may not) come a point
in time when you need to consider either in home care or a nursing facility.
Even your parent would agree that you need to take care of yourself and your
family first. You cannot spread yourself so thin that you're not taking the
time you need to keep yourself well. Or you start neglecting your spouse or
children. Maybe it's possible to share the responsibilities with your siblings.
If it is, do it! I have heard stories of this working out wonderfully. Your
parent(s) get to visit all the kids and grandkids (great-grandkids?) all year
round and you get a break part of the year. But don't take on more than your
lifestyle can handle. Everyone will suffer for it.
5. Don't hit old
people. Don't steal their money. No mental, psychological, or sexual abuse
either. It does happen. Report people who do it, even if you like them.
6. Money. No one
wants to feel like they are taking advantage of their parent(s). The fact is,
it can be expensive taking on the care of a loved one. Have a talk about what
(if any) financial contribution is going to be given if your parent is moving
in with you. Helping out with groceries? Helping out with rent? Only
responsible for their own expenses? It's not an unreasonable request. What is
unreasonable is asking you to foot the bill for every single thing. You may have the best of hearts, but your pockets are only so deep.
7. The official
stuff. It's a good idea to take care of the official paperwork as soon as you
can. Pick a responsible sibling (sorry only children) and start the ball
rolling on Power of Attorney (financial and durable), Do not Resuscitate,
Living Will, official Will, any Trusts, properties, stocks, bonds... Some of
these things will need to be notarized and a Notary will not sign them once it
is obvious that a person is not capable of signing for themselves. It
does not matter if you have their best interests at heart. It's the law.
8. Create a
support system. It takes a village to raise a family, right? Well it also takes
one to care for your parents. The village will be there at the beginning of
your life and at the end. Never feel like you are alone. Whether you are
dealing with Alzheimer's disease, physical disabilities, a long list of
medications, incontinence, diabetes, AS, MS, or a host of other ailments, there
are many other people out there going through similar situations. And they are
willing to share stories and advice with you. So take notes.
9. Be prepared for
the role reversal. As your parent ages things are going to change. They are not
going to be as capable of doing the things they were once able to do. There
will come a point in time you will have to take the car keys away, set up a
safer way to take showers/baths, monitor meals and snacks, make sure
medications are being taken, keep activities going (mental and physical), keep
all doctor appointments, and a slew of other things that come with increasing
age.
10. Did you keep
your sense of humor?